For Our Future

In our healthcare system, 65% of data belonging to patients is siloed, unstructured and is held in different forms across patient care, research and payment ecosystems. — Source: Health Information Technology Advisory Committee (HITAC)
Today, a consistent patient health story is nearly impossible to track and share because data are unreliable, lack standardization, and are largely unusable. CodeX is the only member-driven community focused on solving the problem of silos endemic to our current healthcare system for specialty health data. We enable high-quality computable data — using Health Level Seven International (HL7) and Fast Healthcare Interoperability Resource (FHIR) standards — to create an open common language for patients, care teams, and researchers to advance data ownership, sharing, and reliability.
 

Building data unity

for patients, clinicians, and research.

Common data definitions drive high-quality computable data that are trusted, consistent, and usable.

Icon of person climbing rising steps
Elderly patient, nurse, and clinician chatting with one another.

Caring for Every Patient

Break down silos and manual processes for efficient care and research across all settings, building trust with your care team and accurate data.

Clinician and nurse looking at x-ray to assess their patient's condition.

Learning with Every Patient

Create easily accessible, accurate, and longitudinal patient stories that caregivers can use to personalize treatment and care.

Group of people working with each other to fit puzzle pieces together.

Transforming Care for All

Revolutionize healthcare and research by leveraging standardized data of individual patients to contribute to the health of all future patients.

People's lives are depending on what we do and what these data tell us

Dr. Monica Bertagnolli

Prior President of American Society of Clinical Oncology, Prior Group Chair of Alliance for Clinical Trials in Oncology

Health Data.

Collect Once,

Use Everywhere.

CodeX is a global community of healthcare stakeholders currently working on data standards in three domains. We build and implement in the field and on-site.

Data elements of patient connected together in a digital format.

Cancer

The first domain that the CodeX community tackled is cancer. Using the minimal Common Oncology Data Elements (mCODE), an open data standard enabling high-quality data capture for cancer that can be widely adopted.

70+ oncology elements in use at Dana-Farber Cancer Institute, MD Anderson Center, Massachusetts General Hospital and 45 other institutions. Versions of the mCODE and associated modeling tools are currently operational in over 250 organizations.

See Our Work

Genomics

This team is advancing the standardization, interoperability, and exchange of genomic data to improve care processes, clinical workflows, and patient outcomes from all areas of clinical care.

See Our Work

Cardiovascular Health

This team is engaging patients, as well as clinical and research stakeholders, to create standard representations of heart health to enable standards-based interoperability in cardiovascular health and healthcare.

See Our Work

Our Traction

Since 2019, CodeX has been working in partnership with our community, building interoperable systems to positively impact the lives of real patients.

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External Sources of Funding

The CodeX Community

The CodeX Community stakeholder map which includes patients, researchers, providers, payers, pharmaceuticals, health systems, public health, advocacy groups, global community, health IT, regulators, and philanthropy.

Patients

Growing a high-resolution longitudinal health record with easier access to care, research, clinical trials, and your health data.

Providers

Improving care continuity with standards-based clinical specialty data, spending more time on care than administration.

Health Centers

Assuring efficient, interoperable data exchange and reporting, and improved patient and care team satisfaction.

Pharma and Life Science

Increasing diversity and accessibility in clinical trial enrollment, improving treatment and drug safety monitoring.

Health IT

Removing data inaccuracies by embedding structured CodeX data in real-world innovative solutions.

Research

Improving diversity and equity in clinical research with improved trial matching, common data sets, and targeted population research.

Regulators

Advancing healthcare policy decisions with timely, high-quality data in registries and adverse events reporting.

Philanthropy

Building collective impact to accelerate health equity, research, and care outcomes.

Public Health

Assuring real-time public health data and solutions for diverse populations across care and research settings.

Payers

Gaining insights to drive effective value-based care models and fraud reduction.

Advocacy Groups

Mobilizing efforts by understanding the healthcare and research needs and challenges in the communities you serve.

Global Community

Growing a global learning health system through open-standards clinical specialty data.
RESEARCH

Use Case Spotlight:

ICAREdata

Clinical trials are the gold standard for clinical care interventions. 92% of cancer patients in the United States are not enrolled in clinical trials due to poor data collection of their cancer therapies. This project focuses on collecting key outcome data that is standardized, research-grade, and longitudinal across organizations to promote health equity and reduce burden on health sites. This novel approach to data collection has already been adopted by over 13 health sites.

Read more use cases

News & Updates

CodeX Quality Measures for Cancer Project

HL7 News Summer 2023 Edition June 20, 2023

HL7’s official publication features an article on the CodeX Quality Measures for Cancer Project on page 18.

Cancer patients are willing to share their data in hopes of finding solutions, not just for themselves but for patients in the future

Debi Willis

CEO and Founder of PatientLink Enterprises, Cancer Survivor

Check Out Our Latest White-Paper

This white paper explores how the minimal Common Oncology Data Elements (mCODE™) standard could be leveraged to achieve more equitable health outcomes for cancer patients from diverse populations.

Read Here

Build and Innovate on Our Work

We enable high-quality computable data using Health Level Seven International (HL7) and Fast Healthcare Interoperability Resource (FHIR) standards to create a common language.

Get Engaged

CodeX hosts events every month to keep our community informed and engaged, and to make sure the public’s opinions are heard.

Attend Upcoming Events

Expand Our Reach

There are currently over 250+ stakeholders involved in CodeX. Become a member today or join our community of practice. We also are looking to expand our partnerships across various health systems to include small community health centers. Spread the word and implement CodeX at your institution.

Contact Us

Support Our Mission

Funding from foundations, philanthropies, and government organizations will allow us to further scale and drive maximum adoption across systems. Your support will also allow us to expand our work into new domains such as genomics and cardiovascular disease.

Contact Us

See Who's Involved

Open Source

CodeX tools and implementations are open source under the Apache 2.0 license. CodeX data standards are available under the Creative Commons 0 license (CC0). Take a closer look at our technical work at our GitHub.

Read the mCODE Implementation Guide